"When you get those rare moments of clarity, those flashes when the universe makes sense, you try desperately to hold on to them. They are the life boats for the darker times, when the vastness of it all, the incomprehensible nature of life is completely illusive. So the question becomes, or should have been all a long... What would you do if you knew you only had one day, or one week, or one month to live. What life boat would you grab on to? What secret would you tell? What band would you see? What person would you declare your love to? What wish would you fulfill? What exotic locale would you fly to for coffee? What book would you write?"


Monday, September 21, 2009

A Look Into Alzheimer’s: Is Early Diagnoses a Better Diagnoses?

20 years ago, Alzheimer's was an inevitable fear looming in the minds of aging adults reaching their 60s. Everyone knew about it, was afraid for it. People in their late 50s forgot their keys or forgot someone's name that they just met and immediately thought they had Alzheimer's. People with parents or close relatives with the disease thought they were sure to be doomed to have the inevitable disease included in their destiny. The article I choose this week to write about focuses on the benefits of diagnosing Alzheimer's early, but today I also want to talk about my own feelings on Alzheimer's development.

The article, "Early Diagnoses Lets Patients Look Alzheimer's Square In the Face", written by Alexi Friedman, makes a strong point that people that are diagnosed early enough and are put on immediate medications, have a much better chance of slowing down the disease. She brings up a member of her community who was 72 years old and was having difficulty remembering things. Upon learning she definitely had the degenerative disease, she made proactive decisions to join a safe housing structure with support group meetings, make "to-do" lists, and get on the right medications (Aricept or Namenda). Even nursing home and care centers that specialize in Alzheimer's care are noticing the difference, and are expected to start changing their plan of care within the coming 20 years. Quote from vice president of the Alzheimer's Association of NJ, "This type of self advocacy by patients was virtually unheard of 20 years ago, when caregivers were the ones to reach out for information and support. But as more people are diagnosed earlier, they [patients] are increasingly taking control of their own futures and, by doing so, forcing traditional Alzheimer's organizations to rethink their missions." I think its great that these patients are choosing to take control. They want to remain part of their lives and the decision making process. Years ago, all we, and the patients suffering and their caregivers did was hope that the unknown researchers were hopefully making progress on the cure somewhere out there. We sat back and watch the killer disease rip through the brain and create multiple broken hearts. But now the patient can slow it down. Multiple video games even are being released purposefully directed at the aging adults. These games include mind games such as word puzzles, anagrams, and other puzzles that "make you think".

The other topic I wanted to bring up was something I had a good conversation with my boyfriend about. We got started first when I had mentioned that people were living to be so old nowadays, and how it was so strange to think about back thousands of years ago, my age right now (21) maybe being one of the "elders". How strange is that? I had asked him, how could it be that over the thousands of generations, how in time did it get to be that nowadays a 15-25 year old is seen as somewhat immature, that we are still "so young". If we have a baby, we are looked down upon for it. We shouldn't be married so young…but back then, 12-20 year olds were forced to have babies. They were married at 12. If they were lucky to even make it to 25-30 they were a town "elder"…even though they probably looked like I do right now (body type wise). Did they even know what we today call an "old" person looked like? What happened to a human as it got older? Were there some breakthroughs that made it past 60? He replied with the fact and very interesting thought that maybe human beings aren't and never were supposed to get old…Maybe that was never intended and we are making a mistake by extending our lives so much. Maybe Alzheimer's was never supposed to happen, and it is not a disease per say but a natural reaction to the brain fighting old age? If we all lived long enough and died from no other cause, I'm sure we all would eventually get it. He made the point that the body fights getting older, with arthritis, and heart attacks, etc. Maybe God had never intended for us to live this long (on average) and the fact that we are actually intentionally prolonging life is a huge mistake. I take the stand personally on letting death happen naturally. Sure, It is tragic when someone dies prematurely in a car accident or murder when they were otherwise healthy. Should we fight to keep them alive, if they have a chance? Yes, In most cases. But should we give donor implants and artificial limbs to people above the age of 70 just so they can stay alive artificially? We wonder why our planet is getting so crowded…We wonder why and not ever before we are experiencing Earth's fight back on us for being too harmful to the environment. We were never supposed to be here this long, and we got too smart to figure out how to artificially let us stay here longer.

So should they keep fighting for an Alzheimer's cure? Yes. Why? Because who wants to spend the last 10-30 years of their life in a nursing home or assisted living or even worse stuck in bed, or not knowing who their children are or where they are? Who wants to spend 10-30 years with a spouse or parent that doesn't know who you are? Who would ever want the feeling of not remembering anything or being told they weren't allowed to drive? Although I believe that we shouldn't artificially prolong life, curing Alzheimer's isn't prolonging life. It's making life more enjoyable.

So long readers, til next time…

~A writer in a Nurses Body

Sunday, September 13, 2009

Technology: Is it Rewiring Our Sense of Communication?

I picked an article called "Getting 'Disconnected' is Next to impossible" and it reached me in a lot of ways; I found it very interesting. First off, the article is written by a weekly columnist in my home newspaper, Leonard Pitts, and is about how because of cell phones advanced technology nowadays, it is nearly impossible to disconnect from our society. Not only cell phones, but credit cards, GPS, cameras, ATMs, email, facebook, subway cards, EZ Pass' all connect us to a world to a point where we can always be tracked, always be found. Even Ipods nowadays can connect to the internet from anywhere. More and more restaurants, even my local laundry mat has free wi-fi available now. The interesting part is, most of us at this point in time no longer want to be disconnected. Despite us having cell phone's for ten years, and heavy use of them within the last five years, if we lose our cell phone or forget it at home, it turns into a major daily crisis. And we all know that's true! Forgetting it at home, despite having an hour drive to work, class, etc., some people would find it acceptable to turn back to get it. How is it possible to survive the day without being in touch? What if people worried about you all day because you weren't answering? How would you arrange meetings, friend or business? We forget that not too long ago this would have sounded completely absurd. If you forgot it on a business trip that lasted over a week, most people would probably consider if not actually buy a new phone. Quote the columnist who did forget it at home on his business trip, "Had I found myself standing there in my underdrawers, I don't think I'd have felt more naked. There was this panicky sense of isolation, this disconcerting feeling of being cut off. Whenever I confessed my plight, I got looks of stark pity like you'd give someone with a terminal disease."

Has technology actually developed the power to control our lives like this? Has technology "utterly rewired our sense of what it means to be in touch?" Are we losing a sense of real human communication face to face, or just moving into new sense of communication that is natural in the "future"? What will our future be like if this is what it is now? Will we even have to talk to each other? Will you be able to have a complete conversation with your friend in person without speaking? Even today we can see each other from a hundred thousand miles away through web cams. We can talk to soldiers that we love… So is this a bad thing? I don't think so. I think its just a new thing. The people that disagree are the people that are too used to a non-technologic world where you walked to your friend's house to see if she wanted to grab lunch instead of texted them. However, I am seeing more and more people over the age of 65 now that are very much able to use their cell phone fluently. My own grandmother already has a facebook page and she is 75!

So how does this relate to nursing? How can this be an advantage or disadvantage to nursing? Does this type of communication have any right to enter the world of nursing? IPods nowadays can download applications that can help nurses make correct IV calculations. They have ones that have a complete drug guide installed. You can download textbooks to these, install a Spanish translation (among other languages) to these devices specifically for nurses to use. You can download a database that has thousands of diseases saved that can be identified if you punch in a couple symptoms…Is this OK? Is it a major disadvantage to be using this small device that patients may mistake to be a cell phone in front of them? Can we rely on these calculations made by these devices for accurate IV doses? Or are they even more reliable and accurate then our human brain?

Something to think about. Nurses nowadays are constantly being told to turn off their cell phones in hospitals, as well as patients, patient's families, etc. But who actually has the willpower to do so and not turn it back on? Particularly when you are working a 12 hour shift? Most nurses have their cell phone somewhere on their body, and it is usually turned on. Movies always ask for you to turn your phone off, as well as the theaters, airplanes, because it affects speakers and technology. But they are actually making speakers that won't be affected by the cell phone interference now because everyone knows you can't ask an entire audience or airplane to turn off your cell phone.

What Defines a Hero?

I am not about to sit here and lie about my knowledge of politics. I pretty much only know the basics and personally choose not to bother myself with the stress of nationwide and worldwide politics. To me, Its all jibberish. Sure, I voted. Sure, I didn't like George W. Bush. Why? Because on my basic level of knowledge of politics on the surface, I didn't see any clear evidence of good accomplishments Bush was making in his presidency. Barack Obama, although many are already unimpressed, I have a good feeling about. But that's not what this essay is about.

The article I choose is titled, "Iraqi Shoe Flinger Gets Hero Treatment" and was featured in the USA Today and written by columnist Nadeem Majeed. Last December, Iraqi TV journalist Al-Zeidi threw both of his shoes at President George Bush during a speech in Baghdad. Bush was unharmed, and Zeidi was immediately arrested and thrown in a Baghdad jail for nine months (originally a three year sentence). Iraqis have many mixed feelings about this, as do I, America, and the Bush family. Most Iraqis are treating Zeidi as if he saved 100 people from a burning building. On a telephone interview an Iraqi quotes, "All Arab people…hope to get the chance of doing of doing what (Al-Zeidi) did." Zeidi, due to be released this Monday has received the following in his honor: Full pay by his employer while he was in jail, a two story fully furnished villa bought by his employer, numerous wedding offers, with brides coming "loaded with jewels and gold", A prince in Qatar has offered to pay for all his health care, A businessman offered Zeidi $10Million for the "famous" shoes… His brother quotes, "What he did was heroic and deserves all this appreciation from people who hate occupation".

Bush has downplayed the incident, despite him looking foolish ducking the shoes being chucked at him on national T.V. He plays it off as a "show of dissent in a newly democratic Iraq." Former first lady Laura Bush calls it no laughing matter and it was a direct assault. A common Iraqi man also has mixed feelings as he quotes "He should have spent more time in jail to learn how to respect guests".

What it comes down to, is how is one to define a hero? Webster defines hero as " a man admired for his achievements and noble qualities or 'one that shows great courage'". Clearly, the Iraqis think that Zeidi fits this description on their side. Technically, every "side", every "team" has their own hero, and he/she is the enemy, or the "villain" to the opposing side. But who is right? In the Iraqi eye, George Bush might seem like the "evil villain" which is why they feel no remorse for treating him with disrespect. Take a common action movie for example. We (the audience) are exposed to one side, one team. We learn to love our hero character, we are rooting for his/her side throughout. The movie usually shows clips (maybe) of the villain side doing horrible things to detriment the "good side". But if you flip it around and look at both sides of the story, the "villain" is doing what he feels what is right and what he needs to do. Excluding your typical comicbook where the villain is just some nasty troublemaker that is in it for pure joy and evil, most villains nowadays are common people that are fighting for their own cause, their own dignity and respect, or fighting for their own country. Technically, in the eye of many other countries, the USA is the "bad guy". But who is the "good guy" in every American movie? Duh. Its all about whose side is portrayed and how.

So, yes, I think it is silly and disrespectful of Zeidi to have thrown his shoes at our president. I think it is absurd as to how much treatment and appraisal he is receiving. But on the other hand, I definitely knows where he and the rest of Iraq is coming from. Here is their country, living the way they liked it and we come in a change everything around and get in everyone's business. Who would like that? What if Al-Qaeda or Sadam Hussein were to have ever received the unlikely chance to make a speech here in the U.S.? Would we not treat the person that threw a shoe, or something worse at him as a hero? Think about it…

Saturday, August 1, 2009

True Love....Or Denial?

This post will be about a lot of things I've saved up to say, but mainly about one issue in particular.

So I have this patient that has brain cancer, and multiple brain tumors. As an aide, I really don't know many details at all, except that she has been stuck in bed for 25+ years because of brain surgery gone wrong 25+ years ago. They hit a wrong nerve or something I suppose...Like I said, I don't know all the details.

Her appearance is....ghastly. She is in her 60s and is bald, with maybe a couple strands on each side that stick up behind her head like horns. SHe has sores all over her head (I'm not sure why). But she does have pretty eyes. Now, I know for a fact that although it may be true that she suffered some brain damage, I know she can definitely hear what we are saying, and she will sometimes even respond. She watches everything that is going on around her and I can tell she is processing information. There have been multiple occaisons where she smiled to something I said or after having had her for over 2 weeks and gaining her trust, she will smile when I walk in room. She can sometimes also answer "Yes" or shake her head no when asked a yes or no question.

Now the issue is her husband. At first I thought I was witnessing worlds best marriage. Her husband comes in every single day and spends a couple hours at her bedside. When I walk in on the two of them he says things like "She gets more and more beautiful every day, doesnt she?" I respond with "Yes." with a smile. He responds back with "No really, she really does. Every day. She's just gorgeous." He also talks to her, tells her everything about his day. He tells me about her past, how she used to be the sweetest woman he ever met, how pretty she was. She had a doctorate in education, she taught young kids...He tells me how they had 25 years of a blissful marriage, how she never spoke a word or ever made any argument. She wouldn't hurt a fly.

At first I thought this was sweet...borderline very sad, kinda creepy...kinda not-human like. But I didnt think much further on it. Last night, her nurse however asked me if she puts up the same reaction when I go near her, how she acts very scared. Her eyes look scared when ever you touch her or go near her. She tenses her body up (her arms at least, her legs dont move) and she sort of will try and pull away from you. I told the nurse that yes, she used to do that to me but now she trusts me and all you have to do is explain you wont hurt her and what you are doing.

We both started to wonder why it is she feels scared. There is most likely a logical reason. She did spend quite some time in our local nursing home. Did something happen there, repeatedley?
Is her husband doing some sort of emotional or physical abuse, or neglect? She was under his care for a good 10 ten years, and she was forced to go to hospital/ nursing home because she was neglected in terms of horrible bed sores.

The interesting part is when we tell the husband she has to go to back to the nursing home from now on. He insists she come back with him...but we had to wait for him to get his new apartment so it would be 2 weeks, and we can't hold her for two more weeks. He starts getting very angry saying how this is a "conspiracy" against him and her that we dont let her go back with him. But really, he can barely walk, how is he going to take care of her? Turn her? Prevent her from getting more sores? She needs to realistically be in a nursing home, but he cant see it. He doesnt see her for what she is right now...he is seeing 30-50 years ago. . . Also, they mentioned that this situation often happens because the spouse wants to collect that persons SS, so they will elect to keep them living in a house rather than a nursing home, where the nursing home gets the SS....Interesting thought.

It just worries me. Is she screaming inside when he comes around? She can't say phrases. She never screams. But I know she's in there....And i know this sort of stuff happens. I just wish I knew and wish he would realize he is not suited to take care of her any longer.

Will write more soon, but currently on the run.


~ A Writer in a Nurse's Body